Ever After

Wednesday, September 3, 2008

Chair Rocky

Bre was excited to see the new chair sitting in the living room this evening which she called a "chair rocky" (too cute).

More pictures to follow.......

One of the worst things about him being sick and missing school is making up his work. For some reason even though he is an honor student he hates doing school work at home and makes it so difficult for all involved.

Again

Marcus's hip is causing him a lot of pain again to the point he is haivng trouble walking. His chest is also tight.
I guess I will call the doctor again in the morning to see what they have to say.

Tuesday, September 2, 2008

Positive

SLCH called today. Marcus's MRI was normal and so are all the blood tests so far except his ANA
http://www.labtestsonline.org/understanding/analytes/ana/test.html
Being ANA positive could be a huge sign of Lupus or it may mean nothing. We are still waiting on other bloodwork and go back on October 1st.

American

Two years ago today a very tired foursome landed in LA. There a beautiful baby girl became an American citizen once her passport was stamped.

Monday, September 1, 2008

They smell like.....

ORANGES!
That was what Bre had to say about the peach colored roses that Joey brought in for me this morning.
This girl cracks me up. To her orange flowers should smell like oranges I guess.

Sunday, August 31, 2008

'New' symptom

While we were in the hospital the doctors asked many, many questions. One of those being did Marcus ever have trouble breathing or chest pains.
He would shake his head no to answer them and I even I asked him if he remembered complaining of chest pains in the past. He swore he never had any issues in that area. I chalked it up to having mommy burn out brain and told myself I was wrong and he never did complain with chest pains.
Now back home guess what his major problem has been today? Tightness in the chest and shortness of breath.
This, along with other symptoms can be a sign of Lupus.

ETA: he also keeps on getting more sores (fever blisters?) in his mouth which can be another sign of the disease.

just because

Oh My!

Joey doesn't take pictures very often but when he does it is always entertaining. In the pics below he chopped off the top of Marcus's head in the every one but this one here...well he outdone himself.
Look closely at Bre off to the side. Apparently she had just finished using the potty and came into the living room before pulling her underwear back up. Joey is just so dang good with his photography skills that he managed to snap this unforgettable shot.

Cardinal's Gear

Joey snapped these pics the first day of school. Marcus was Cards head to toe. Of course Bre had to get in the act too.

Saturday, August 30, 2008

Home

We are home.
He isn't pain free but the pain medicine (Oxycodone) is doing a good job of controlling it at least. He is also on Naproxen for any inflammation.
We know nothing for sure yet. The doctors ran a lot of blood work, some of which has to be sent to Barnes's national headquarters in Denver for testing and will not be in for at least two weeks. They are also doing an intensive urinalysis and done a MRI last night. Of course it is a holiday weekend so we will not know anything till Tuesday once everyone starts working again.
As of now they think he is suffering from some sort of autoimmune disease, possibly Lupus. Joey has several family members with Lupus so it would stand to reason that is where they are turning their concerns to.

Thursday, August 28, 2008

Admitted

Marcus has been admitted to SLCH for testing. Hopefully we will be back home soon.

Wednesday, August 27, 2008

pain....Update

Marcus is in so much pain. How he deals with extreme pain is to act goofy and bored. I know him better and know it is nothing but shear pain making him act this way.
I hate this. No active 10 year old child should get a hip infection period, especially not 2 in less than six months.

Update...
Joey just went after a script of Vicodin. Man there are not enough words to describe how much I hate this!

Tuesday, August 26, 2008

Lighten it up some, please

You know that saying that God only gives you what you can handle but I wish he didn't trust me so much?
We are living it right now and have been for some time.
I don't post about personal issues on this blog and won't so let's just say I am going through the hardest emotional time of my life-ever. To top it all off Marcus has another hip infection. This makes the second one in less than 6 months. He is in a lot of pain and can hardly walk. We are due in St. Louis to see all of his old immunologists this Thursday.
If you are a praying person then please say a prayer cause we sure could use an extra one right now. If you aren't a person who prays then please send good thoughts our way and tell the universe to lighten up some.