Saturday, January 3, 2009

Hope

So why did we end up in Cincinnati so soon?

Joey had drove to Memphis to start his flight back to Brazil. After he was already in TN he finds out that his flights had been rescheduled for the 1ST cause the rig had been moved.
During this time back at home I was becoming more and more worried about Marcus, he looked awful. He was pale white with dark black circles under each eye. His pain level was through the roof too.
When Joey got back home I told him to go and have a good look at Marcus. He said the same thing I had been thinking, we could no longer wait to get a diagnosis and help.
By 10PM that night we were on the road heading to Ohio.
We took him through the ER and rheumatology meet us. There is no other way to put it than to say God was watching out for us. The top doctor over the department came down to exam him. We didn't know it at the time but Dr. Lovell was named one of the top doctors in 2008 (as well as 2005). Maybe we got him cause we said we wanted the best they had but I think the whole situation was above that.
After reviewing his records from St. Louis, asking many questions and a very good exam he told us without a doubt he does NOT have Lupus! He has Juvenile Primary Fibromyalgia Syndrome. Yes it can be a chronic disease and he will have pain from time to time but it can get better with the proper rest and exercise. This was the greatest thing I have ever heard in my life----it WILL get better! I know Joey and I were both fighting back the tears and the desire to hug this doctor who just told us that there was a light at the end of this very dark tunnel we have been stuck in for almost a year now.
He sent us down to see a physical therapist who fitted him with special inserts for his shoes. He instantly started walking better, less of a limp and straighter. She also showed him some exercises to do to loosen yet strengthen his muscles that are so tense and causing all the pain.
He has been wearing his shoes, doing his exercises, and taking his sleeping pill and is already doing much better. Right now he is sitting at the kitchen table doing his homework without being forced to and it is all because he feels better overall.

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