Tired

Today is one of those days that the world is piling up on me and I am just tired, tired of it all.
I'm tired of fighting for my son, trying to get one doctor to REALLY listen to us and see how all his medical problems just might somehow be related.
Tired of trying to figure out where to take him next and what to do with the other 2 kids, the house and animals while I am gone.
Sick and tired of the genetics department. I finally had to go and pick up an info pack in person because 2 got lost in the mail. Then it took them over 2 weeks to receive the completed info. So instead of us having an appointment say this week we don't have one till the 8Th of next month.
I'm tired of fighting for his education. Even though 99% of his teachers are great it only takes one to drag you down and make you want to crawl back under the covers.
So tired of watching my beloved baby boy in pain day after day and being totally helpless as a parent.
Tired of watching him drag himself to school even though he is sick and in pain. He doesn't feel like going but what choice does he have when the school top administration does not have a heart and only cares about what looks good on paper.
Tired of the way I feel when I know his friends are off to play another basketball game without him. Even though I am happy that they are healthy I can't help but feel that sick twinge of I don't know exactly what it is in the pit of my stomach.
So scared that when I try to research hospitals that are known for treating Ehlers-Danlos (most doctors agree it is a great possibility) I read about child after child that have suddenly died from aneurysms because they were undiagnosed. The last one I read about last night was a 12 year old boy........